āPlease, suspend the rules until we look at this policy,ā Barletta, a Pennsylvania Republican, asked Sebelius during a House hearing Tuesday on behalf of Sarah Murnaghan, a 10-year-old girl who needs a lung transplant. She canāt qualify for an adult lung transplant until the age of 12, according to federal regulations, but Sebelius has the authority to waive that rule on her behalf. The pediatric lungs for which she currently qualifies arenāt available.
āI would suggest, sir, that, again, this is an incredibly agonizing situation where someone lives and someone dies,ā Sebelius replied. āThe medical evidence and the transplant doctors who are making the rule ā and have had the rule in place since 2005 making a delineation between pediatric and adult lungs, because lungs are different that other organs ā that itās based on the survivability [chances].ā
Barletta countered that medical professionals think Murneghan could survive an adult lung transplant. During the exchange, he also said that the girl has three to five weeks to live.
http://washingtonexaminer.com/sebelius-wont-waive-regulation-for-girl-with-five-weeks-to-live-someone-lives-and-someone-dies/article/2531097